How can we as advocates gain (earn) greater acceptance and respect in the scientific community? It would mean a lot of effort but in my honest opinion, we would become more powerful if we were to: 1. Become highly educated
on the shoulders of Giants
When I was stumbling around after my diagnosis, I was looking for some way to personally fight PD. I had no knowledge about the early “giants” in the Parkinson’s community who had paved a pathway for those coming later. Who were
beating a symptom
As PD progresses, you wake up one morning and have a new symptom. Sometimes symptoms lessen when a new one takes prominence. Recently My bladder urgency changed for the worse when I unknowingly had a urinary track infection (UTI). No
anxiety
I’m still driving. I only drive around my local area, and I can tell that it won’t be too long before I am required to stop. I will hate losing that independence (and my husband will hate it too). MY
latest news
I am now in my late 60s, and have had Parkinson’s for 16 years now. Actually I have had PD for more than 30 years. By the time you get a diagnosis of PD, you have already lost about 85%
home
advanced Parkinson’s
PD is progressive, and it keeps on marching with us through life to the end. That is certain. PD has been my companion for 40 years now (harking back to those early symptoms). And 16 years since diagnosis. And with